So here's an update- some of you know about Kaden's 106 degree fevers that recur every month for no apparent reason...well we finally went to a specialist last week and they think he may have what's called PFAPA (periodic fever, aphthous stomatitis, pharyngitis, cervical adenitis). This is exactly what I thought it was after googling "recurring fevers" and reading a bunch of reports...so thanks specialist, but I googled it already??!
They basically know nothing about WHY they get this syndrome, or HOW to fix it...but it usually ends after 10 years old, and there are some random treatments that work (they don't know why) in certain cases. We've opted to treat him with some stomach ulcer meds that are supposed to keep the fevers lower and less frequent. It's kind of a pain because he has to take it twice a day every day- but if it will keep the fevers down then it's worth it. I cannot tell you how scary it is to have your 2 year old up at 1am with a 106 degree fever. So if these meds work then we'll keep them up- if not then there are some other tests they can run to rule out other syndromes, and if all else fails, a tonsillectomy has helped in some cases (again, they don't know why!) Here is a link to more information if you're curious: http://www.orpha.net/data/patho/GB/uk-PFAPA.pdf
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2 comments:
Poor little guy! That would be so scary! Nicholas has only had high fevers a couple times and it was awful. (((HUGS))) Darc. I hope the stomach ulcer meds help. Keep me updated.
How scary! At least you have a name for it... not that it really makes it much better!
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